A tale of love, healing and a curse

At the age of 33 my husband was diagnosed with ME/CFS. There is apparently no cure, just ‘managing the condition’. I watch my geriatric young husband stumble through his days in a fog of exhaustion and confusion. Every failed attempt at raising a limp arm or formulating a weak thought burns a welt on my consciousness.

Alternately, I rage at the universe, pray fervently and sometimes beg, curl up into a ball of defeat, turn up my chin defiantly and cope.

In my secret reckonings with God I ask why, if he is the loving father that I believe him to be, would our lives be tossed around in a mighty sea in such a careless way. And always the answer comes back: 'ask yourself what you have done, ask that hungry, all-consuming darkness in you what it has done to your love'.

(PS: Thought of e e cummings’ ‘anyone lived in a pretty how town’ today.)

Once upon an indifferent time,

there was a damsel much damaged.

She sat by the wayside and dreamt of a prince

who would kiss her withered lips.

One evening of brew and kindling touch,

the promised prince arrived on a dream.

After much singing and dancing around trees

the damsel and the prince were wedded in bliss.

There followed the interminable middle,

as happy as tale endings are.

Many moons waked and sunsets dawned,

they lived the fairy part of the tale.

The prince couldn’t stop the falling in love

and he fell into magical healing powers.

The damsel’s deadened damaged selves

grew animated languorously.

Many more moons and sunsets passed.

‘Til once, under a suitably stormy sky,

the damsel stared at a terrible truth:

the prince was slowly crumbling away.

The random curse of a careless witch:

at the highest of his helpless falling his

spirit would leave him, and take with it

all his love and youthful years.

On that fateful stormy night

the damsel’s hungry distress rose

and cried out for love’s sustenance,

while the prince crumbled like paper in flames.

Thus was the dismal denouement:

the prince became as dust in the air;

the damsel was left for all her days

with fragments only half alive.